One thing about life is there are balances. For instance I cannot do what I used to do physically, but the age also brings with it experience and the know how to get things done. When you are young and starting out you do more physical work to get the money to get by.....when you are older you use the mind. I love seeing my friends kids getting a taste of life . My nieces and nephews are doing the same things. I love what I have been through but once was enough and I wish all the young folks a very hearty good luck.
I have never been a parent but have many "kids." Well....about done with my say and I thank you for even reading this blog.
Life with Hunter's Syndrome
I am going to try and describe what the genetic problem does to a person. Hopefully, I will help someone in advising how to deal with the physical aspects......also some of the emotional and economic things that will affect anyone that has to get help. These physical problems definitely will change and alter your lifestyle. I am not going to get technical because with all the technical input from all the doctors I have seen never meant anything to me.(I know they are trying to help but I need layman's terms.) All I knew is I was way too young to be feeling this way.
Hunter's Syndrome is a rare disease in which some enzymes are missing. While most people's joints heal the basic ingredient to heal is missing. In other words you age much faster than a normal person. It has affected my hearing, eyesight and many other parts of the body. Actually I am lucky too have a such a mild case as I am now 46 years old.
The story starts at the bottom post and works its way up.
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