Been a while since I have added anything....so here goes. It costs me more to run my air conditioning but to have it less humid helps my joints alot. I noticed in late May....early June when I could open the windows my shoulders and neck would really get to hurting. Like I say it costs more but I have to do it.
Making this blog has helped me get rid of some of the bad feelings I have towards lawyers, insurance companies and Social Security but it will never be fully repaired. To this day I loathe dealing with them all.
Then to go out and try to socialize and get called various names by people that have sat on the same barstool for 25 years and have nothing really irks me. The one thing they did have that I never did was their health and they wasted it.
People that waste a good healthy life are on the bottom of my list. I let them know it anymore also...I used to be a quiet nice guy but someone says anything wrong to me now. I avoid them like the plague. Life is to short to put up with pessimists and the naysayers.
I also would like to thank those that support my website. Ya just never know when you might be the one who needs help. Thank you all.
Life with Hunter's Syndrome
I am going to try and describe what the genetic problem does to a person. Hopefully, I will help someone in advising how to deal with the physical aspects......also some of the emotional and economic things that will affect anyone that has to get help. These physical problems definitely will change and alter your lifestyle. I am not going to get technical because with all the technical input from all the doctors I have seen never meant anything to me.(I know they are trying to help but I need layman's terms.) All I knew is I was way too young to be feeling this way.
Hunter's Syndrome is a rare disease in which some enzymes are missing. While most people's joints heal the basic ingredient to heal is missing. In other words you age much faster than a normal person. It has affected my hearing, eyesight and many other parts of the body. Actually I am lucky too have a such a mild case as I am now 46 years old.
The story starts at the bottom post and works its way up.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment