It would not have mattered if I had known about having Hunter's or not. My dad got me a job where he worked which was decent pay....good actually. By now my jaw was not able to open very wide and my hearing was progressively getting worse. (Just a note on the jaw...if it happens get it fixed while you are young because they say mine is not fixable because of my age.)
I loved the job and stayed with it for the 22 years. It was a very physical job but I liked it.
I traveled extensively. Working in Des Moines, Iowa...Kansas City, Mo.....Denver, Co....New Orleans, La....Rogers, Ar....and about a thousand small towns in between.
Once when I was in between jobs I tried to join the Air Force but was turned down because of my poor hearing.
But throughout my working life....20's and 30's everything went pretty well. I actually was starting to do quite well by the year 2000. Loved where I was living and I was on the union board. Then things started to change and I had no idea what was happening to me.
Life with Hunter's Syndrome
I am going to try and describe what the genetic problem does to a person. Hopefully, I will help someone in advising how to deal with the physical aspects......also some of the emotional and economic things that will affect anyone that has to get help. These physical problems definitely will change and alter your lifestyle. I am not going to get technical because with all the technical input from all the doctors I have seen never meant anything to me.(I know they are trying to help but I need layman's terms.) All I knew is I was way too young to be feeling this way.
Hunter's Syndrome is a rare disease in which some enzymes are missing. While most people's joints heal the basic ingredient to heal is missing. In other words you age much faster than a normal person. It has affected my hearing, eyesight and many other parts of the body. Actually I am lucky too have a such a mild case as I am now 46 years old.
The story starts at the bottom post and works its way up.