I don't like going on about the ordeal of getting help but I think people should know what they are up against. Finally in the fall of 2002 I recieved a letter saying I would get Social Security. I did not know the first five months are withheld and I also had to pay the attorney. But I recieved my retroactive pay and started to dwindle down some of my debts. (I wrote my senator about the first five months being withheld....that is crazy...that is when a person really needs help.)
Well, with the hurdle of Social Security over my union disability kicked in. Now I was still dealing with a Worker's Comp. lawsuit.
The lawyers for the work comp. insurance company made me out to be a lying, gold digging fool. I was just not used to that kind of treatment and it did hurt what little pride I had left.
But I hung in there and took all their comments and six months later it finally ended. I hardly got anything but I did get a little. That also went to my debt payoff. Now I contacted the state insurance division and entered a complaint against the disabilty company that I had my pickup loan covered with. Two days later that was settled with them paying me the full amount. At least I was finally getting some of my debt paid off and could now focus on my health.
Life with Hunter's Syndrome
I am going to try and describe what the genetic problem does to a person. Hopefully, I will help someone in advising how to deal with the physical aspects......also some of the emotional and economic things that will affect anyone that has to get help. These physical problems definitely will change and alter your lifestyle. I am not going to get technical because with all the technical input from all the doctors I have seen never meant anything to me.(I know they are trying to help but I need layman's terms.) All I knew is I was way too young to be feeling this way.
Hunter's Syndrome is a rare disease in which some enzymes are missing. While most people's joints heal the basic ingredient to heal is missing. In other words you age much faster than a normal person. It has affected my hearing, eyesight and many other parts of the body. Actually I am lucky too have a such a mild case as I am now 46 years old.
The story starts at the bottom post and works its way up.
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